
I’ve written about writing this piece before, so I won’t go into all that back story again. But I wanted to share the essay once again, since it’s the last day of Congenital Heart Disease Awareness Week. Already, since I first published this piece last August, several more states have passed laws requiring the pulse oximetry screening — which is truly terrific news. But it’s still not required in all 50 states. And even states that have the law on the books may be slow to enforce it — as was the case for us. So if you’re a new or expecting parent, it’s worth asking (and then double-checking) to be sure this life-saving test is performed.
Thank you so much for supporting all of this awareness raising this week!


Virginia, Violet is so beautiful! A great big THANK YOU for the awareness you are raising here. Even though I’ve had two pregnancies, I have never heard of the pulse oximetry screening—and you can rest assured that for my next child, I will be checking.