I’ve written about writing this piece before, so I won’t go into all that back story again. But I wanted to share the essay once again, since it’s the last day of Congenital Heart Disease Awareness Week. Already, since I …
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I’ve written about writing this piece before, so I won’t go into all that back story again. But I wanted to share the essay once again, since it’s the last day of Congenital Heart Disease Awareness Week. Already, since I …
After my article about Violet was published in Parade this summer, I received so many amazing letters from parents of CCHD children and from several adult CCHD survivors. I read and saved every email (yes, even if I didn’t have …
I wrote the first draft of this essay quite soon after we came home from Violet’s first (22 day) hospital admission. Our life had just exploded, everything was raw, and I was filled with questions. My (excellent, patient, compassionate) midwife …
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