Tag Archives: Congenital Heart Defects

Talking Jimmy Kimmel, Heart Kids and Saving the ACA on CNN’s Don Lemon

I had a quick appearance on CNN with Don Lemon last night (watch it here). Pretty much everyone has been talking about Jimmy Kimmel’s beautiful monologue about his son Billy, who was born a few weeks ago with complex congenital heart defects. It’s thoughtful and eloquent (and still funny!), all the more so because he delivered it so soon after Billy’s first open heart surgery. Their family is just beginning to process this diagnosis and the traumatic journey they’re now on. But he recognized the importance of using his platform to raise awareness about protecting the Affordable Care Act, as the Republicans try once again to take it down.

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Filed under Government Watch, Health, Sick

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It Cost $2.5 Million to Keep My Child Alive (Slate.com)

I’ve got a new piece up on Slate on how repealing the Affordable Care Act could impact families like mine (yes, even with employer-sponsored insurance). And it will do even more damage to poor families relying on Medicaid to pay for their children’s complex healthcare needs. A little background there: As part of their ACA repeal goals, Republicans want to convert Medicaid and Medicare entitlement funds into block grants, which means that the amount of money a state receives will no longer depend on how many of its citizens need coverage. When that happened to welfare, we saw states tighten up eligibility requirements so much that 74 percent of American families with children living in poverty are now no longer able to get cash assistance when they need it.

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Filed under Freelance Life, Health, On Eating and Writing

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The story of Violet’s heart. #CHDAwarenessWeek

The story of Violet's heart. #CHDAwarenessWeek

I’ve written about writing this piece before, so I won’t go into all that back story again. But I wanted to share the essay once again, since it’s the last day of Congenital Heart Disease Awareness Week. Already, since I first published this piece last August, several more states have passed laws requiring the pulse oximetry screening — which is truly terrific news. But it’s still not required in all 50 states. And even states that have the law on the books may be slow to enforce it — as was the case for us. So if you’re a new or expecting parent, it’s worth asking (and then double-checking) to be sure this life-saving test is performed.

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Filed under From Instagram, Happenings, Health, Press

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