I’ve written about writing this piece before, so I won’t go into all that back story again. But I wanted to share the essay once again, since it’s the last day of Congenital Heart Disease Awareness Week. Already, since I first published this piece last August, several more states have passed laws requiring the pulse oximetry screening — which is truly terrific news. But it’s still not required in all 50 states. And even states that have the law on the books may be slow to enforce it — as was the case for us. So if you’re a new or expecting parent, it’s worth asking (and then double-checking) to be sure this life-saving test is performed.
Feeding struggles are about so much more than tubes — and unfortunately, these issues all too often go misdiagnosed. Or worse, get classified as “picky eating” and are blamed on bad parenting. Feeding Matters is a great organization that offers a lot of support and resources for families. If you’re concerned about your child’s eating, their Infant & Child Feeding Questionnaire is a great place to start.
In fact, some babies and young children will starve themselves — because eating is too difficult, painful, or traumatizing. And too often, parents face judgment instead of support. For a full list of conditions that can necessitate tube-feeding, check out the Feeding Tube Awareness Association’s list. (So many other good resources there!)
Now back to our regularly scheduled programming (aka, the things you’d expect me to write about): Campus rape!
I’ve been following the current campaign to address this issue for quite awhile now. Emma Sulkowicz, Ariel Koren and the other women leading the fight on this are doing such brave, important work. They’re dealing with the immediate aftermath: What to do about frat parties, and less-than-proactive university administrators and all of the other factors that contribute to rape culture on our college campuses, right now. But I’ve also wondered: What about the (far too many) women who were raped in college a decade ago? Or four decades ago? What are the ripple effects of this experience on their adult lives, especially since these attacks happened long before colleges were prepared to protect and empower victims?